Useful documents
- IScore [PDF, 1.08 MB]
- Snapshots of palliative and end-of-life care in the acute care setting [PDF, 123 KB]
- Route to success in acute setting [PDF, 1.01 MB]
- Best Practice Statement and Short Guide [PDF, 1.30 MB]
- Multi-faith resource for healthcare staff (PDF, 867KB)
- Living and dying well (PDF, 489KB)
- Living and dying well – Building on progress (PDF, 957KB)
- Support around death
- Intracerebral Hemorrhage (ICH) Score
Useful websites
- Scotland Palliative Care Guidelines – includes sections on symptom control, pain management, subcutaneous medication, medication issues, non-cancer palliative care, care planning, patient information and resources.
- NHS Inform has a general Palliative Care section: https://www.nhsinform.scot/care-support-and-rights/palliative-care
- NHS National End-of-Life Care Programme – works with health and social care services across all sectors in England to improve end-of-life care for adults by implementing the Department of Health’s End of Life Care Strategy. Our website is designed to support health and social care staff working, in any capacity, with people nearing the end of life.
- Scottish Guidance ‘Caring for people in the last days and hours of life’: https://www.gov.scot/publications/caring-people-last-days-hours-life-guidance/
- Scottish Partnership for Palliative Care is an umbrella and representative organisation which, through a collaborative approach, supports and contributes to the development and strategic direction of palliative care in Scotland.
- Goldstandardsframework.org.uk enabling all care settings to provide a ‘gold standard’ of care for all people nearing the end of their life.
- https://www.organdonationscotland.org/ for information on organ and tissue donation in Scotland
- https://www.scotblood.co.uk/about-us/tissues-and-cells/ for information about tissue donation in Scotland.
- NICE guideline [NG31]: Care of dying adults in last few days of life
- Palliative Care Formulary PCF 7 14:Prescribing in Palliative Care 15: Anticipatory prescribing in the community
- Palliative Care Knowledge Zone
- Support Around Death (NHS Education Scotland) website supporting health and social care staff who are working with patients, carers and families before, at, and after death. It provides key information on the clinical, legislative, and practical issues involved.
- Support Around Death Covid-19 Bereavement resources (NHS Education Scotland) webpages providing resources for health & social care staff in Scotland concerning death and bereavement during the COVID-19 pandemic.
Care pathways/local guidance/local contacts
- Local guidance: e.g. Scottish Palliative Care Guidelines
- Referral form: e.g. Example of a referral form [PDF, 39KB]
There may be variations in Palliative care guidelines between countries and regions. The resources we have provided are by no means exhaustive- please familiarise yourself with relevant local guidelines.
Useful links to resources that can be provided to patients and families
- Good Life, Good Death, Good Grief website providing information and support that can help through the difficult times that can come with death, dying, loss and care.
- Good Life, Good Death Good Grief, Support with covid-19 this site also provides important additional resources for people in Scotland who may be worried that they, or someone they care about, is at increased risk of getting seriously ill and potentially dying from COVID-19.
- Dying Matters is a coalition of individual and organisational members across England and Wales, which aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life.
- NHS Inform provides information on palliative care, support & rights.
Page last reviewed: 08 Nov 2021
